Finally a CT news channel who wants to help get the word out on FTD, check out the piece Fox 61 CT did on FTD and our family! Thanks to Mike Magnoli for your time in helping us educate CT about FTD. View it at www.FOXCT.com.
Frontotemporal Dementia is the disease you've never heard of. Commonly referred to as FTD, Frontotemporal Dementia is a dementia similar to Alzheimer's Disease. While Alzheimer's Disease accounts for 50 to 80 percent of those diagnosed with dementia, FTD represents 10 to 20 percent of dementia cases, affecting men and women equally. The frontal and/or temporal lobes are what gets damaged from the disease.
Frontotemporal Dementia is characterized by changes in behavior, personality, language and/or motor skills, as well as deterioration in a person's ability to function. FTD is a progressive disease striking a younger population with symptoms typically occurring between the ages of 50 to early 60's. The effects of FTD however, are just as devastating as those of Alzheimer's and tragically there is no cure.
"It Is What It Is" chronicles four families as they confront FTD. By telling their stories, these families reflect experiences common to many and become harbingers of hope. The DVD is accompanied by a 12-page informational booklet on frontotemporal degeneration, which is also available to download free of charge.
Our 2nd Annual Golf Tournament is right around the corner!
Please join us on August 4, 2014 at Stanley Golf Course in New Britain, CT. Registration is at 9:30 with a shot gun start at 10:30. The tournament will be run as a scramble and there will be a box lunch, dinner, drink ticket, and raffles. Registration is $140 per person and can be done online or by check. Tickets for just the dinner are $40.
The money raised is to help fund FTD research and raise awareness so come out for a fun day and help a good cause!