Welcome to The Connecticut Frontotemporal Dementia Foundation, Inc.

June Support Group Date Change

Please be aware we have changed the June support group to June 12, 2016 due to Father's Day.  Everything else will remain the same, Arden Courts of Farmington at 1:00.

Register now for our 4th Annual Golf Tournament on Friday, August 19, 2016

We will be hosting our 4th Annual Golf Tournament on August 19, 2016 at Lyman Orchards Golf Club in Middlefield, CT.  You may register now for our golf tournament.  We will update our Facebook page and newsletters with all our sponsors and raffle prizes.  Please contact us with any questions - info@ctftdfoundation.org.


Register here: 

“Using the iPad with someone who has Dementia”  
Keeping a person with dementia engaged in activities 
is very challenging for caregivers


June 15th, 5:30 to 6:30

Alzheimer’s Association CT Chapter
200 Executive Blvd., Suite 4b

Southington, CT 06489

RSVP: Nicole Beaucar

nbeaucar@alz.org; 860-828-2828
 

Ed Fitzgerald, a technology consultant whose wife is living with Frontotemporal Dementia, looked for ways to use technology to help her.

After some trial and error, he began using the iPad and created a home screen of activities combining, apps, links, games, videos, pictures and more, which he uses when they are together.


Ed can demonstrate how he uses the iPad, the process by which he created a customized set of activities that are of interest to his wife and offer advice on how to proceed if someone is interested in pursuing it with their loved one.


While he uses an iPad, some of what he talks about applies to a Kindle and Nook as well.


Interested in knowing about future seminars or want to arrange one at your location, please contact Ed Fitzgerald at edfitztech@gmail.com.   

 

Our Third Annual FTD Educational Seminar was a Success!


The FTD seminar sponsored by the CT FTD Foundation and hosted by the River House Adult Day Center in Greenwich was held on November 17th. Thirty five health care professionals, including some family caregivers, attended the event and there were more on the waiting list once registration was closed.


The featured speakers were Dr. Edward (Ted) Huey, who specializes in FTD at Columbia University Medical Center and Jill Goldman, MS, MPhil, CGC, Senior Staff Associate and Genetic Counselor at Columbia University Medical Center. Their presentation “Diagnosing Frontotemporal Degeneration, the Dementia No One Knows About” described FTD, its symptoms and behaviors, how the disease differs from Alzheimer’s and the role genetics play in diagnosis and assessing hereditary risk within a family.


Thank you to the Republican-American and Carrie MacMillan for the wonderful article on our foundation and FTD.  We are grateful to everyone who helps us educate people on FTD and supports our mission to raise awareness and money for frontotemporal dementia.

Read at http://rep-am.com/news/local/901738.txt

Finally a CT news channel who wants to help get the word out on FTD,
check out the piece Fox 61 CT did on FTD and our family!
Thanks to Mike Magnoli for your time in helping us educate CT about FTD. 
View it at www.FOXCT.com.  

 





In Memory of
Kevin Michael Harvey

Frontotemporal Dementia is the disease you've never heard of. Commonly referred to as FTD, Frontotemporal Dementia is a dementia similar to Alzheimer's Disease.  While Alzheimer's Disease accounts for 50 to 80 percent of those diagnosed with dementia, FTD represents 10 to 20 percent of dementia cases, affecting men and women equally. The frontal and/or temporal lobes are what gets damaged from the disease. 

Frontotemporal Dementia is characterized by changes in behavior, personality, language and/or motor skills, as well as deterioration in a person's ability to function. FTD is a progressive disease striking a younger population with symptoms typically occurring between the ages of 50 to early 60's. The effects of FTD however, are just as devastating as those of Alzheimer's and tragically there is no cure.

FTD: "It Is What It Is" DVD    
"It Is What It Is" chronicles four families as they confront FTD. By telling their stories, these families reflect experiences common to many and become harbingers of hope.  The DVD is accompanied by a 12-page informational booklet on frontotemporal degeneration, which is also available to download free of charge. 

Upcoming Events

Sunday, Jul 17 at 1:00 PM - 2:30 PM
Friday, Aug 19 at 8:30 AM - 4:00 PM
Sunday, Aug 21 at 1:00 PM - 2:30 PM
Sunday, Sep 18 at 1:00 PM - 2:30 PM

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