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We are hosting our 6th Annual Golf Tournament on Friday, August 17th at Lyman Orchards Golf Club in Middlefield, CT.  You may register online, by mail, Venmo, or Square.  Registration is $150 per person ($600 per foursome) which includes 18 holes with cart, lunch, buffet dinner, drink ticket, and 6" pie.  The tournament is run as a scramble and starts at 9:30, contact us for more information.

We will be hosting our 4th Annual Golf Tournament August 19th at Lyman Orchards Golf Club in Middlefield, CT.  More details will be provided on our website, Facebook page, and newsletter in the next coming months.

Our 3rd Annual Wine Tasting is in just a couple days, tickets remain on sale online till Friday for $30.00.  Otherwise tickets can be bought at the door for $35.00.  We have great raffle items that are listed under our wine tasting page.  Below are some of our silent auction items:

iPad Air - $550 value

10 Seat Executive Suite Hartford Wolfpack game - $550 value

Ideal Image gift card - $1,000.00

Yale Golf - $500 value

Simsbury Farms Golf - $140 value

Down Comforter - $350 value

Ryobi 24V String Trimmer/Edger - $100

Rigid 18V Compact Drill/Impact Driver combo - $150

Hope to see you there!

If you are in the Rhode Island area this weekend there will be "A Walk to Remember" on Saturday at Providence College to support the Alzheimer's Association of RI. It is coordinated by Michelle LaFrance, she is a Providence College student from Bristol and her father has FTD. 

http://www.providence.edu/news/headlines/Pages/PCs-first-Alzheimers-walk.aspx

We will be hosting A Night With FTD at the Alzheimer's Resource Center of Connecticut in Plantsville at 7:00 PM, special guest speaker Jill Goldman of Columbia University.  Donations will be accepted at the door for The AFTD.  Please contact us to RSVP for this event.

Please join us at Arden Courts of Farmington Wine & Cheese Event from 5-7 P.M.  Another event which is part of The AFTD's Food for Thought Campaign.  Donations to The AFTD will be accepted at the door.  Please contact us to RSVP to this event.

We are honored once again that the ING Employee Giving Campaign has selected The CT FTD Foundation as the recipient of their golf tournament fundraiser.  It will be held on September 12, 2013 at Topstone Golf Course in South Windsor.  Registration starts at 9:00 with a shotgun start at 10:00 and registration is $150.00 per person.  Registration must be in by August 30th.  If you are interested please contact us at [email protected]  

Thanks again to ING and their Employee Giving Campaign for doing wonderful things and donating to our foundation.

One week till our 1st Annual golf tournament at Stanley Golf Course in New Britain.  We would like all registrations completed today.  If for some reason you can't register today but would like to play, contact us at [email protected]  

We have partnered with the Traveler's Golf Tournament Birdies for Charity program. We ask that you generously make a pledge of any amount (as low as 1 cent) per birdie during the tournament June 17- 23, 2013. You can pledge online through our organization's pledge website, pledges must be in by June 23rd, 2013 by 6:00 P.M. 

https://events.r2it.com/birdies/r.aspx?site=travelerschampionship&charity=TheCTFrontotemporalDementiaFoundationInc

In July after the actual amount of birdies is counted by Travelers, you will receive an invoice for the pledge amount owed and that will need to be sent to:

Attn: Birdies for Charity 
CohnReznick
180 Glastonbury Blvd, 4th Floor 
Glastonbury, CT 06033

Traveler's Championship will then send us one lump check for 100% of the pledges we collected. Thanks again for supporting our foundation!

Our 1st Annual golf tournament will be held on Monday, August 12, 2013 with a shot gun start at 10:30.  Registration will begin at 9:00 and the tournament will be run as a scramble.  Registration is $130.00 per person, $520.00 a foursome, and includes lunch and a buffet dinner with raffles following golf.  Tickets can be bought online or a check can be written to The CT FTD Foundation & sent to PO Box 462, Marion, CT 06444.  Tickets for the dinner can also be bought for $40.00.  Please register by August 5, 2013.

Anyone who has a raffle to donate or would like to be a sponsor please contact us at [email protected]

We are pleased, honored and proud to announce that The CT FTD Foundation has donated $20,000 to the following programs:

1. Kids’ Website – $10,000 The AFTD is in the process of designing and developing an engaging, educational website for children and teens. This website will provide age-appropriate information about FTD, interactive elements, tips and tools for coping with everyday challenges as well as ways for them to share with peers also affected by a parent with FTD. Our donation is the final piece of funding necessary to get this website up and running.

2. Drug Discovery - $5,000 The AFTD co-founded this program with The Alzheimer’s Drug Discovery Foundation (ADDF).  This provides the only organized funding program specifically to stimulate drug discovery for FTD. Gifts to this program are matched 2:1.

3. Friend of Rachel Program - $5,000 This program is designed to train undergraduate students (mainly from Columbia University) about dementia and caregiving. Students will be matched with people in the early stages of dementia. The idea is to maintain quality of life as well as giving a bit of respite time for the caregiver. Pre-professionals will also be trained about the personal aspects of dementias. Money will be used for research and training.

These donations were all made possible due to the kindness and generosity of family, friends and all those who supported our foundation in one way or another. We thank you from the bottom of our hearts. Thank you for honoring Kevin’s memory. We ARE, and WILL continue to make a difference in the lives of those affected with this devastating disease.

Just a quick thank you to everyone who donated, attended, volunteered, and supported our 2nd Annual Wine Tasting.  It was a huge success and we look forward to doing it again next year, put March 8th, 2014 in your calendars!

We are so excited to be hosting our 2nd Annual Wine Tasting today:

New Britain VFW

41 Veterans Drive (across from the New Britain Rockcats Stadium)

New Britain, CT 

Parking and entrance are in the back.

Lots of great wine, beer, raffles, and a live band.  It will be a great night and we will still be selling tickets at the door.  Look forward to seeing everyone there!

Just 2 days left to buy your tickets at $30.00, we will be selling tickets at the door but the price goes up to $35.00.  We  have over 50 great raffles (spas, restaurants, golf, amusement park passes, and so much more).  We can't wait for another great event and hope to see you there!1

In three months we will be holding our 2nd Annual "It Just Makes Sense" Campaign, February 4th - 8th, 2013.  Please help by placing a container at your place of work so people can put loose change in to raise money for The CT FTD Foundation, Inc.  This fundraiser is held during this week because it is when Kevin was diagnosed with FTD.  Please contact us to find out how you can join!

You and your fellow golfers can help...

This years Employee Giving Campaign Golf Tournement will benefit "Harvey's Hugs of Hope" & " The Connecticut Frontotemporal Dementia Foundation, Inc."

Their mission is to:

promote the funding necessary for research in finding the cause, therapies, and cures for FTD

support those diagnosed with FTD along with their families and caregivers

educate health professionals so that they have the knowledge and skills to work with FTD patients and families

advocate with Public Officials to provide adequate and appropriate programs and services

For more information about these charities: http://www.ctftdfoundation.org/

REGISTER ON OR BEFORE MONDAY, AUGUST 20th TO BE ENTERED IN A RAFFLE FOR A GOLF GIFT BASKET!

All entries and payment must be received by Friday, August 31st.

The CT FTD Foundation made it into the AFTD newsletter for our successful wine tasting event that allowed us to donate $10,000 to fund research and Kevin's name was mentioned for donating his brain to research.  Click below to view the newsletter...

http://www.theaftd.org/wp-content/uploads/2009/02/AFTD-Summer-Newsletter.pdf

On behalf of Harvey's Hugs of Hope, we are proud to announce the first donation from The Connecticut Frontotemporal Dementia Foundation, in the amount of $10,000 to be given to The AFTD's Care and a Cure in loving memory of Kevin.

With every dollar donated, The Alzheimer's Drug Discovery Foundation (ADDF) will match 2:1. Money raised will be used to stimulate research collaborations and to help fund grants that will lead to treatments and ultimately one day a cure for FTD.

Please view The AFTD's web site at http://theaftd.org/ to read more about this wonderful campaign.

We thank all of you who have willingly and generously donated to our foundation. It is because of YOU that this donation was made possible.

We are and we will continue to make a difference in the lives of those affected with this dreadful disease. We thank you again from the bottom of our hearts.

FTD Awareness Bracelets: AFTD now has FTD Awareness bracelets available! They are a two-color silicone bracelet (red and white) with black type that says “Fight This Disease” and AFTD’s website. There is no charge for these. To receive 15 bracelets, please send an email to [email protected]

Research investigating the pathologic mechanisms of neurodegeneration in frontotemporal degeneration (FTD) and related disorders is advancing, creating new potential targets for drug discovery. The Alzheimer’s Drug Discovery Foundation (ADDF) and The Association for Frontotemporal Degeneration (AFTD) seek to accelerate and support drug discovery for FTD and related dementias through this Request for Proposals (RFP).

Priority areas for this program include:

• Target validation studies

• Development and testing of novel high throughput screening assays

• Medicinal chemistry on lead compounds

• Identification and in vitro testing of potentially disease modifying lead compounds

• ADME, toxicology, pharmacokinetics, pharmacodynamics on lead compounds

• Testing of lead compounds in a relevant animal model for preclinical proof of concept

• Development of biomarkers to accelerate drug development and early diagnosis

• Innovative pilot clinical trials

PLEASE NOTE: THIS FUNDING WILL NOT SUPPORT APPLICATIONS FOR BASIC RESEARCH

Mechanism(s) of Support: ADDF/AFTD will provide grants for one-year duration (up to $150,000 each) with the possibility of follow-on funding. Applications may be submitted by non-profit academic institutions and for-profit biotechnology companies, both public and private, worldwide. Please note that funding to biotechnology companies is typically made as a program-related investment.

Review Process: The deadline date for applications is September 20, 2012. Submission of a Letter of Intent (LOI) is required prior to September 6th, 2012. Applications will be confidentially reviewed by the ADDF and an external Scientific Review Committee, including members of AFTD’s Medical Advisory Council. Applications from biotechnology companies will also be reviewed by ADDF’s external Business Advisory Board. Award winners will be publicly announced in Spring 2013.

APPLICATION PROCEDURE

All letters of intent and applications must be submitted electronically at www.alzdiscovery.org.

To further discuss scientific or financial aspects of proposals, please contact:

Diana Shineman, PhD, Assistant Director for Scientific Affairs

Phone: 212-901-8007

E-mail: [email protected]

For more information regarding the application process, please contact:

Niyati Thakker, Grants Associate

Phone: 212-901-8019

E-mail: [email protected]

Click on the link to learn more about AFTD's "With Love" Campaign 2012

http://theaftd.givezooks.com/campaigns/aftd-s-with-love-campaign-2012

Please join us for our 1st Annual Wine Tasting on March 3rd, 2012 at the Wolcott VFW, 1115 Wolcott, CT 06716.  Tasting will start at 7 PM and tickets are $30.00.  For more information please use the contact us tab on the left hand side of our webpage to get more information about purchasing tickets!