Read here to find information on our fundraising events and FTD news.

If you wish to volunteer for any of our fundraising events, please email us at

It Just Makes Sense Campaign - February 4, 2013

In three months we will be holding our 2nd Annual "It Just Makes Sense" Campaign, February 4th - 8th, 2013.  Please help by placing a container at your place of work so people can put loose change in to raise money for The CT FTD Foundation, Inc.  This fundraiser is held during this week because it is when Kevin was diagnosed with FTD.  Please contact us to find out how you can join!

ING Employee Giving Campaign Golf Tournament - August 18, 2012

You and your fellow golfers can help...

This years Employee Giving Campaign Golf Tournement will benefit "Harvey's Hugs of Hope" & " The Connecticut Frontotemporal Dementia Foundation, Inc."

Their mission is to:

promote the funding necessary for research in finding the cause, therapies, and cures for FTD

support those diagnosed with FTD along with their families and caregivers

educate health professionals so that they have the knowledge and skills to work with FTD patients and families

advocate with Public Officials to provide adequate and appropriate programs and services

For more information about these charities:



All entries and payment must be received by Friday, August 31st.

Thank you! - August 12, 2012

Thanks to all our family and friends for coming to last nights game!

New Britain Rockcats Baseball Game - August 10, 2012

Please join us for a fun family night out on August 10th, 2012 for baseball and fireworks.  Tickets are $10 and half goes to the CT FTD Foundation.  Please contact us for more information!

The Summer AFTD Newsletter - July 26, 2012

The CT FTD Foundation made it into the AFTD newsletter for our successful wine tasting event that allowed us to donate $10,000 to fund research and Kevin's name was mentioned for donating his brain to research.  Click below to view the newsletter...

FTD Drug Discovery - June 8, 2012

On behalf of Harvey's Hugs of Hope, we are proud to announce the first donation from The Connecticut Frontotemporal Dementia Foundation, in the amount of $10,000 to be given to The AFTD's Care and a Cure in loving memory of Kevin.

With every dollar donated, The Alzheimer's Drug Discovery Foundation (ADDF) will match 2:1. Money raised will be used to stimulate research collaborations and to help fund grants that will lead to treatments and ultimately one day a cure for FTD.

Please view The AFTD's web site at to read more about this wonderful campaign.

We thank all of you who have willingly and generously donated to our foundation. It is because of YOU that this donation was made possible.

We are and we will continue to make a difference in the lives of those affected with this dreadful disease. We thank you again from the bottom of our hearts.

New York Times Frontotemporal Dementia Article - May 22, 2012

FTD Awareness Bracelet - March 26, 2012

FTD Awareness Bracelets: AFTD now has FTD Awareness bracelets available! They are a two-color silicone bracelet (red and white) with black type that says “Fight This Disease” and AFTD’s website. There is no charge for these. To receive 15 bracelets, please send an email to

CT FTD Fundraiser Braacelets - March 2, 2012

We are selling beads that fit Pandora, Chamilia, Troll, Biagi, and most other charm bracelets to benefit our foundation.  A great way to show your support and makes a good gift!  Just fill out our form and send it in. Please contact us with any questions -  Forms can be found under our photos page.

Accelerating DRUG DISCOVERY for Frontotemporal Degeneration - 
February 22, 2012

Research investigating the pathologic mechanisms of neurodegeneration in frontotemporal degeneration (FTD) and related disorders is advancing, creating new potential targets for drug discovery. The Alzheimer’s Drug Discovery Foundation (ADDF) and The Association for Frontotemporal Degeneration (AFTD) seek to accelerate and support drug discovery for FTD and related dementias through this Request for Proposals (RFP).


Priority areas for this program include:

• Target validation studies

• Development and testing of novel high throughput screening assays

• Medicinal chemistry on lead compounds

• Identification and in vitro testing of potentially disease modifying lead compounds

• ADME, toxicology, pharmacokinetics, pharmacodynamics on lead compounds

• Testing of lead compounds in a relevant animal model for preclinical proof of concept

• Development of biomarkers to accelerate drug development and early diagnosis

• Innovative pilot clinical trials



Mechanism(s) of Support: ADDF/AFTD will provide grants for one-year duration (up to $150,000 each) with the possibility of follow-on funding. Applications may be submitted by non-profit academic institutions and for-profit biotechnology companies, both public and private, worldwide. Please note that funding to biotechnology companies is typically made as a program-related investment.


Review Process: The deadline date for applications is September 20, 2012. Submission of a Letter of Intent (LOI) is required prior to September 6th, 2012. Applications will be confidentially reviewed by the ADDF and an external Scientific Review Committee, including members of AFTD’s Medical Advisory Council. Applications from biotechnology companies will also be reviewed by ADDF’s external Business Advisory Board. Award winners will be publicly announced in Spring 2013.



All letters of intent and applications must be submitted electronically at


To further discuss scientific or financial aspects of proposals, please contact:


Diana Shineman, PhD, Assistant Director for Scientific Affairs

Phone: 212-901-8007



For more information regarding the application process, please contact:


Niyati Thakker, Grants Associate

Phone: 212-901-8019


AFTD's "With Love" Campaign 2012 - January 11, 2012

Click on the link to learn more about AFTD's "With Love" Campaign 2012

It Just Makes Sense Campaign - January 8, 2012

Please join us for the It Just Makes Sense campaign!  To find out how your company can participate please email us at

The First Annual IT JUST MAKES SENSE campaign

To benefit The Connecticut Frontotemporal Dementia Foundation

To be held during the week of February 6, 2012

FTD, as it is commonly referred to, affects 10% to 20%

Of all those diagnosed with dementia

FTD strikes at an early age,

It is a rare, rapidly progressive disease

And sadly, there is no cure

Please help by dropping off your loose change

In the container in the Main Office

All your donations are greatly appreciated

Thank you for your part

In making this campaign

A successful one!

1st Annual Wine Tasting - December 27, 2011

Please join us for our 1st Annual Wine Tasting on March 3rd, 2012 at the Wolcott VFW, 1115 Wolcott, CT 06716.  Tasting will start at 7 PM and tickets are $30.00.  For more information please use the contact us tab on the left hand side of our webpage to get more information about purchasing tickets!