Read here to find information on our fundraising events and FTD news.

If you wish to volunteer for any of our fundraising events, please email us at [email protected]

Save the Date - Friday, August 17, 2018

We are hosting our 6th Annual Golf Tournament on Friday, August 17th at Lyman Orchards Golf Club in Middlefield, CT.  You may register online, by mail, Venmo, or Square.  Registration is $150 per person ($600 per foursome) which includes 18 holes with cart, lunch, buffet dinner, drink ticket, and 6" pie.  The tournament is run as a scramble and starts at 9:30, contact us for more information.

Save the Date-Friday, August 19, 2016

We will be hosting our 4th Annual Golf Tournament August 19th at Lyman Orchards Golf Club in Middlefield, CT.  More details will be provided on our website, Facebook page, and newsletter in the next coming months.

5th Annual Wine Tasting

Please join us for our 5th Annual Wine Tasting on March 12, 2016 at the DoubleTree by Hilton in Bristol.  Doors open a 7 pm for a fun night of wine, beer, raffles, and a band!  Tickets are $35 and $40 day of the event.  You may buy tickets online at our webstore or send a check to PO Box 462, Marion, CT 06444.  We look forward to another fun night out and we have a special surprise for our 5th year - you will have to be there to see!

3rd Annual Golf Tournament

Our 3rd Annual Golf Tournament will be held on Friday, August 21, 2015 at Lyman Orchards Golf Course in Middlefield, CT.  Registration can be done online or by check.  Checks can be made payable to The CT FTD Foundation, Inc. PO Box 462, Marion, CT 06444.  Registration is $140 per golfer and includes lunch, dinner, drink ticket, and a 6" apple pie.  There will be raffles during dinner.  We are always looking for raffle donations and hole sponsors.  Please contact us at [email protected] to help or with any questions.

La Fortuna Restaurant Night - October 2, 2014

Join us for a great meal at La Fortuna Restaurant in Wolcott.  They will be serving chicken parmigiana and you will also get dessert, part of the night's proceeds will benefit our foundation.  Adults are $10, seniors, $8, and kids 12 and under are $6.  Contact us with any questions!

2nd Annual Golf Tournament

Our 2nd Annual Golf Tournament has been scheduled for August 4, 2014 at Stanley Golf Course in New Britain.  The tournament will be run as a scramble with a 10:30 tee time and 9:30 registration.  Registration is $140 a person which includes a box lunch, buffet dinner, and one drink ticket.  There will also be raffles after dinner.  To register, you can do so online or email use for a form - [email protected]  We are also looking for hole sponsors and raffle prizes so please inquire about that as well.  We look forward to another beautiful day of golf!

Wine Tasting - Days Away!

Our 3rd Annual Wine Tasting is in just a couple days, tickets remain on sale online till Friday for $30.00.  Otherwise tickets can be bought at the door for $35.00.  We have great raffle items that are listed under our wine tasting page.  Below are some of our silent auction items:

iPad Air - $550 value

10 Seat Executive Suite Hartford Wolfpack game - $550 value

Ideal Image gift card - $1,000.00

Yale Golf - $500 value

Simsbury Farms Golf - $140 value

Down Comforter - $350 value

Ryobi 24V String Trimmer/Edger - $100

Rigid 18V Compact Drill/Impact Driver combo - $150


Hope to see you there!

"It Just Makes Sense" Campaign 2014

A week long fundraiser to educate people and raise awareness for FTD.  We ask businesses, schools, etc. to leave a container out for people to leave loose change to raise money for FTD.  We will provide the containers and flyers if you wish to participate in this fundraiser.  Please contact us with any questions at [email protected]

3rd Annual Wine Tasting

On March 1st, 2014 we will be hosting our 3rd Annual Wine Tasting at the New Britain VFW in New Britain, CT.  The night will include several wine tasting tables, Harpoon beer samples, and great raffle prizes.  Feel free to bring snacks and desserts to the event.  Tickets are $30.00 and can be bought online or a check can be sent to PO Box 462, Marion, CT 06444.  Tickets will be $35.00 day of the event.  Please contact us with any questions or if you wish to volunteer at [email protected]

"A Walk to Remember"

If you are in the Rhode Island area this weekend there will be "A Walk to Remember" on Saturday at Providence College to support the Alzheimer's Association of RI. It is coordinated by Michelle LaFrance, she is a Providence College student from Bristol and her father has FTD. 

http://www.providence.edu/news/headlines/Pages/PCs-first-Alzheimers-walk.aspx

Food for Thought Event September 29, 2013

Make it a pizza night on Monday and 10% of the proceeds will be donated to The AFTD.  Thank you to Mediterranean Kitchen and Pizza City of Norwalk.

Food for Thought Event October 3, 2013

We will be hosting A Night With FTD at the Alzheimer's Resource Center of Connecticut in Plantsville at 7:00 PM, special guest speaker Jill Goldman of Columbia University.  Donations will be accepted at the door for The AFTD.  Please contact us to RSVP for this event.

Wine & Cheese Event October 2, 2013 in Farmington

Please join us at Arden Courts of Farmington Wine & Cheese Event from 5-7 P.M.  Another event which is part of The AFTD's Food for Thought Campaign.  Donations to The AFTD will be accepted at the door.  Please contact us to RSVP to this event.

Friendly's Food For Thought Event October 1, 2013 in Southington

On October 1st Friendly's of Southington will donate 20% of your check when you hand them The AFTD donation voucher.  Please make sure you have the voucher with you and take a night off from cooking!  Help a great cause and visit us on the 1st at Friendly's.

2013 ING Employee Giving Campaign Golf Tournament

We are honored once again that the ING Employee Giving Campaign has selected The CT FTD Foundation as the recipient of their golf tournament fundraiser.  It will be held on September 12, 2013 at Topstone Golf Course in South Windsor.  Registration starts at 9:00 with a shotgun start at 10:00 and registration is $150.00 per person.  Registration must be in by August 30th.  If you are interested please contact us at [email protected]  


Thanks again to ING and their Employee Giving Campaign for doing wonderful things and donating to our foundation.

One week till our 1st Annual golf tournament at Stanley Golf Course in New Britain.  We would like all registrations completed today.  If for some reason you can't register today but would like to play, contact us at [email protected]  

Golf Tournament Registration Form

Here is our registration form for the golf tournament if you prefer not to register online.  Please feel free to print and share with fellow golfers!  Just click the link below.  Contact us at [email protected] with any questions or for more information.

Link

August 12, 2013 is our 1st Annual Golf Tournament that will be held at the Stanley Golf Course in New Britain, CT.  Registration is $130.00 per person and includes lunch and dinner.  There will be raffle prizes after the dinner as well.  We will offer prizes for the first place foursome, closest to the pin, and longest drive.  To register, go to our webstore online to purchase or write a check to The CT FTD Foundation PO Box 462, Marion, CT 06444.


For any company that would like to sponsor a hole, please contact us at [email protected]  Any donations are also appreciated!



Birdies for Charity Program - May 29, 2013

We have partnered with the Traveler's Golf Tournament Birdies for Charity program. We ask that you generously make a pledge of any amount (as low as 1 cent) per birdie during the tournament June 17- 23, 2013. You can pledge online through our organization's pledge website, pledges must be in by June 23rd, 2013 by 6:00 P.M. 

https://events.r2it.com/birdies/r.aspx?site=travelerschampionship&charity=TheCTFrontotemporalDementiaFoundationInc

In July after the actual amount of birdies is counted by Travelers, you will receive an invoice for the pledge amount owed and that will need to be sent to:

Attn: Birdies for Charity 
CohnReznick
180 Glastonbury Blvd, 4th Floor 
Glastonbury, CT 06033

Traveler's Championship will then send us one lump check for 100% of the pledges we collected. Thanks again for supporting our foundation!

1st Annual Harvey's Hugs of Hope Golf Tournament - May 23, 2013

Our 1st Annual golf tournament will be held on Monday, August 12, 2013 with a shot gun start at 10:30.  Registration will begin at 9:00 and the tournament will be run as a scramble.  Registration is $130.00 per person, $520.00 a foursome, and includes lunch and a buffet dinner with raffles following golf.  Tickets can be bought online or a check can be written to The CT FTD Foundation & sent to PO Box 462, Marion, CT 06444.  Tickets for the dinner can also be bought for $40.00.  Please register by August 5, 2013.

Anyone who has a raffle to donate or would like to be a sponsor please contact us at [email protected]

Recent Donations - April 19, 2013

We are pleased, honored and proud to announce that The CT FTD Foundation has donated $20,000 to the following programs:

1. Kids’ Website – $10,000 The AFTD is in the process of designing and developing an engaging, educational website for children and teens. This website will provide age-appropriate information about FTD, interactive elements, tips and tools for coping with everyday challenges as well as ways for them to share with peers also affected by a parent with FTD. Our donation is the final piece of funding necessary to get this website up and running.

2. Drug Discovery - $5,000 The AFTD co-founded this program with The Alzheimer’s Drug Discovery Foundation (ADDF).  This provides the only organized funding program specifically to stimulate drug discovery for FTD. Gifts to this program are matched 2:1.

3. Friend of Rachel Program - $5,000 This program is designed to train undergraduate students (mainly from Columbia University) about dementia and caregiving. Students will be matched with people in the early stages of dementia. The idea is to maintain quality of life as well as giving a bit of respite time for the caregiver. Pre-professionals will also be trained about the personal aspects of dementias. Money will be used for research and training.

These donations were all made possible due to the kindness and generosity of family, friends and all those who supported our foundation in one way or another. We thank you from the bottom of our hearts. Thank you for honoring Kevin’s memory. We ARE, and WILL continue to make a difference in the lives of those affected with this devastating disease.

Thank you - March 13, 2013

Just a quick thank you to everyone who donated, attended, volunteered, and supported our 2nd Annual Wine Tasting.  It was a huge success and we look forward to doing it again next year, put March 8th, 2014 in your calendars!

Today is the Day - March 9, 2013

We are so excited to be hosting our 2nd Annual Wine Tasting today:

New Britain VFW

41 Veterans Drive (across from the New Britain Rockcats Stadium)

New Britain, CT 

Parking and entrance are in the back.

Lots of great wine, beer, raffles, and a live band.  It will be a great night and we will still be selling tickets at the door.  Look forward to seeing everyone there!

Last days to buy tickets to wine tasting - March 6, 2013

Just 2 days left to buy your tickets at $30.00, we will be selling tickets at the door but the price goes up to $35.00.  We  have over 50 great raffles (spas, restaurants, golf, amusement park passes, and so much more).  We can't wait for another great event and hope to see you there!1

2nd Annual Wine Tasting - February 14, 2013

In a little less than a month we are hosting our 2nd Annual Wine Tasting.  This year it is at the New Britain VFW because last year we ran out of room.  A good problem to have!  In addition to over 20 wines this year we will also have samples of Harpoon beer and a live band.  The raffle prizes have started to come in as well, we have restaurant gift certificates, spa gift certificates, home decor items (huge hit last year), jewelry items, golf foursomes, Boston Celtic - NY Knick tickets, Six Flag passes, Lyman Orchard gift certificate, and so much more!  Buy your tickets now for $30, either online or send a check to PO Box 462, Marion, CT 06444 - otherwise they are $35 at the door.  Please contact us with any questions at [email protected]

It Just Makes Sense Campaign - February 4, 2013

In three months we will be holding our 2nd Annual "It Just Makes Sense" Campaign, February 4th - 8th, 2013.  Please help by placing a container at your place of work so people can put loose change in to raise money for The CT FTD Foundation, Inc.  This fundraiser is held during this week because it is when Kevin was diagnosed with FTD.  Please contact us to find out how you can join!

ING Employee Giving Campaign Golf Tournament - August 18, 2012

You and your fellow golfers can help...

This years Employee Giving Campaign Golf Tournement will benefit "Harvey's Hugs of Hope" & " The Connecticut Frontotemporal Dementia Foundation, Inc."

Their mission is to:

promote the funding necessary for research in finding the cause, therapies, and cures for FTD

support those diagnosed with FTD along with their families and caregivers

educate health professionals so that they have the knowledge and skills to work with FTD patients and families

advocate with Public Officials to provide adequate and appropriate programs and services

For more information about these charities: http://www.ctftdfoundation.org/

 

REGISTER ON OR BEFORE MONDAY, AUGUST 20th TO BE ENTERED IN A RAFFLE FOR A GOLF GIFT BASKET!

All entries and payment must be received by Friday, August 31st.

Thank you! - August 12, 2012

Thanks to all our family and friends for coming to last nights game!

New Britain Rockcats Baseball Game - August 10, 2012

Please join us for a fun family night out on August 10th, 2012 for baseball and fireworks.  Tickets are $10 and half goes to the CT FTD Foundation.  Please contact us for more information!

The Summer AFTD Newsletter - July 26, 2012

The CT FTD Foundation made it into the AFTD newsletter for our successful wine tasting event that allowed us to donate $10,000 to fund research and Kevin's name was mentioned for donating his brain to research.  Click below to view the newsletter...

http://www.theaftd.org/wp-content/uploads/2009/02/AFTD-Summer-Newsletter.pdf

FTD Drug Discovery - June 8, 2012

On behalf of Harvey's Hugs of Hope, we are proud to announce the first donation from The Connecticut Frontotemporal Dementia Foundation, in the amount of $10,000 to be given to The AFTD's Care and a Cure in loving memory of Kevin.

With every dollar donated, The Alzheimer's Drug Discovery Foundation (ADDF) will match 2:1. Money raised will be used to stimulate research collaborations and to help fund grants that will lead to treatments and ultimately one day a cure for FTD.

Please view The AFTD's web site at http://theaftd.org/ to read more about this wonderful campaign.

We thank all of you who have willingly and generously donated to our foundation. It is because of YOU that this donation was made possible.

We are and we will continue to make a difference in the lives of those affected with this dreadful disease. We thank you again from the bottom of our hearts.

New York Times Frontotemporal Dementia Article - May 22, 2012

FTD Awareness Bracelet - March 26, 2012

FTD Awareness Bracelets: AFTD now has FTD Awareness bracelets available! They are a two-color silicone bracelet (red and white) with black type that says “Fight This Disease” and AFTD’s website. There is no charge for these. To receive 15 bracelets, please send an email to [email protected]

CT FTD Fundraiser Braacelets - March 2, 2012

We are selling beads that fit Pandora, Chamilia, Troll, Biagi, and most other charm bracelets to benefit our foundation.  A great way to show your support and makes a good gift!  Just fill out our form and send it in. Please contact us with any questions - [email protected]  Forms can be found under our photos page.

Accelerating DRUG DISCOVERY for Frontotemporal Degeneration - 
February 22, 2012

Research investigating the pathologic mechanisms of neurodegeneration in frontotemporal degeneration (FTD) and related disorders is advancing, creating new potential targets for drug discovery. The Alzheimer’s Drug Discovery Foundation (ADDF) and The Association for Frontotemporal Degeneration (AFTD) seek to accelerate and support drug discovery for FTD and related dementias through this Request for Proposals (RFP).

 

Priority areas for this program include:

• Target validation studies

• Development and testing of novel high throughput screening assays

• Medicinal chemistry on lead compounds

• Identification and in vitro testing of potentially disease modifying lead compounds

• ADME, toxicology, pharmacokinetics, pharmacodynamics on lead compounds

• Testing of lead compounds in a relevant animal model for preclinical proof of concept

• Development of biomarkers to accelerate drug development and early diagnosis

• Innovative pilot clinical trials

PLEASE NOTE: THIS FUNDING WILL NOT SUPPORT APPLICATIONS FOR BASIC RESEARCH

 

Mechanism(s) of Support: ADDF/AFTD will provide grants for one-year duration (up to $150,000 each) with the possibility of follow-on funding. Applications may be submitted by non-profit academic institutions and for-profit biotechnology companies, both public and private, worldwide. Please note that funding to biotechnology companies is typically made as a program-related investment.

 

Review Process: The deadline date for applications is September 20, 2012. Submission of a Letter of Intent (LOI) is required prior to September 6th, 2012. Applications will be confidentially reviewed by the ADDF and an external Scientific Review Committee, including members of AFTD’s Medical Advisory Council. Applications from biotechnology companies will also be reviewed by ADDF’s external Business Advisory Board. Award winners will be publicly announced in Spring 2013.

 

APPLICATION PROCEDURE

All letters of intent and applications must be submitted electronically at www.alzdiscovery.org.

 

To further discuss scientific or financial aspects of proposals, please contact:

 

Diana Shineman, PhD, Assistant Director for Scientific Affairs

Phone: 212-901-8007

E-mail: [email protected]

 

For more information regarding the application process, please contact:

 

Niyati Thakker, Grants Associate

Phone: 212-901-8019

E-mail: [email protected]

AFTD's "With Love" Campaign 2012 - January 11, 2012

Click on the link to learn more about AFTD's "With Love" Campaign 2012

http://theaftd.givezooks.com/campaigns/aftd-s-with-love-campaign-2012

It Just Makes Sense Campaign - January 8, 2012

Please join us for the It Just Makes Sense campaign!  To find out how your company can participate please email us at [email protected].

The First Annual IT JUST MAKES SENSE campaign

To benefit The Connecticut Frontotemporal Dementia Foundation

To be held during the week of February 6, 2012

FTD, as it is commonly referred to, affects 10% to 20%

Of all those diagnosed with dementia

FTD strikes at an early age,

It is a rare, rapidly progressive disease

And sadly, there is no cure

Please help by dropping off your loose change

In the container in the Main Office

All your donations are greatly appreciated

Thank you for your part

In making this campaign

A successful one!


1st Annual Wine Tasting - December 27, 2011

Please join us for our 1st Annual Wine Tasting on March 3rd, 2012 at the Wolcott VFW, 1115 Wolcott, CT 06716.  Tasting will start at 7 PM and tickets are $30.00.  For more information please use the contact us tab on the left hand side of our webpage to get more information about purchasing tickets!